Help Seanna eat again

Seanna is an incredible 15 year old, but she has lived with more pain than most adults will face in a lifetime. She has spent all her teenage years in hospital beds, ICU units and doctors’ offices. While other teens go to school, study for exams, make plans with friends and plan their futures, she fights to make it through a day without pain.

Everything changed after COVID in 2022. Her body just never recovered. One diagnosis followed another. hEDS, POTS, MCAS and a shopping list of rare abdominal vascular compression syndromes (AVCS). These conditions robbed her of a normal life.

She has had far too many surgeries in her short life time SMA Syndrome (SMAS) , Nutcracker Syndrome (NCS), May Thurner Syndrome (MTS) , Pelvic Congestion Syndrome (PCS). She fought them all and won. But the last one, is the most brutal one of them all - neurogenic Median Arcuate Ligament Syndrome (nMALS).

Seanna cannot eat. Even water hurts. Breathing too deeply hurts. Laughing hurts. She lives on tube feeds and IV hydration through a PICC line. She is exhausted all the time. She cannot...